Going to be really scarce for a little while. - Page 2

RedCherry · 2008-02-29, 11:59 AM

Sorry to hear about your wife Jim. She is in my prayers.

ArtWilliams · 2008-02-29, 01:09 PM

Jim, I am so sorry to hear that. Really, really sorry.

stuveltje · 2008-02-29, 01:18 PM

i am so sorry to hear about those results Jim... i wish i knew how to use better words ( i know how to express my feelings in dutch, but you cant read that) to say what i feel about your message....

JackDaniel's · 2008-02-29, 01:56 PM

Oh Jim ... I'm so sorry to hear your hard news

Please know that you and your wife are in my thoughts and prayers as you travel this very difficult road. Stay strong during this difficult time!

I know it's very hard beacause I'm going through a similar situation myself right now, but remember that hope and positive thinking always helps!

I really hope that everything will turn up all right in the end.

Trev · 2008-02-29, 02:37 PM

Very sorry to hear this news, Jim. All my best to you, Victoria, and your family. You'll be in my thoughts.

Bobc01 · 2008-02-29, 07:20 PM

Life just doesn't seem fair sometimes, if i had any luck at all i'd donate it to you and your lovely wife Jim.

All the very best to you both.

Jim · 2008-04-04, 10:12 AM

We finally have an update. Damn, I really didn't say much in that first post did I?

I am going to try to keep this short. The dizziness is being caused by cancer going to my wife's brain lining and spine. There have since been a lot more problems than just being dizzy. It seems that there is only 1 treatment available and that is in clinical trial at Sloane Kettering in NYC. And, that treatment is only available if there were antigens attached to the cancer cells. 25 days or so ago they took a lymph node and sent it to NYC to see if these antigens were there. We were told it was about a 10 day turn around and we found out the day before yesterday (well over 20 days) that the antigen was there.

I was told when I found out that we would have details in about 4 days after our insurance approved the trial. That's where we are....

I have no idea how this will work. I know it involves a 9 week hospital stay but I don't know really how long we will be in NYC. I am guessing about 3 months but I could be way off. We could be leaving as soon as Monday but I suspect the following week for some reason.

Obviously "scarce" is not the word to use while there. I think the word would be "gone" or at least, "very scarce". I did purchase a new laptop for the trip(s) but still... I think there may be more pressing things going on.

Preacher · 2008-04-04, 10:46 AM

Wow, I'm sorry to hear about the depth of the situation, but good luck with the trial.

If there's anything you need help with to keep the board running, I'm sure you'll have plenty of volunteers.

stuveltje · 2008-04-04, 11:07 AM

tough times, i know a friend of mine going thru the same thing, they are in an other country now already for 8 weeks to deal with it. I hope all goes fine and good luck

sue-fl · 2008-04-04, 11:20 AM

So sorry to read how much the cancer has spread that is very sad. I wish your wife the best with the new treatment. Take care of yourself also Jim.

Tekster · 2008-04-04, 11:22 AM

All the best wishes Jim, hope for the best.

papagmp · 2008-04-04, 11:52 AM

We all pray for the best.

docholly · 2008-04-04, 12:12 PM

Sorry to hear that..
but know that Sloan Kettering is the premiere cancer research hospital in the country so the care she'll get will be top of the line.
We will all be hoping for the very best for you and Victoria.

Jim · 2008-04-04, 12:25 PM

Quote:

Originally Posted by docholly

Sorry to hear that..
but know that Sloan Kettering is the premiere cancer research hospital in the country so the care she'll get will be top of the line.

Second best according to US News

But, that is close enough because the Doctor we will be seeing is the number 1 skin cancer doctor in the country.

SheepGuy · 2008-04-04, 01:34 PM

Sorry to hear that Jim, but glad she is is getting the best treatment out there.

T Pat · 2008-04-04, 01:53 PM

Sorry to hear Jim
been going through the same crap with my Dad for the last couple years

digifan · 2008-04-04, 02:41 PM

Ouch it is real sad... but the trial is a chance and a good one.

Jim · 2008-04-04, 02:44 PM

And, the insurance just gave us a conditional approval. Not sure what that really means but it seems they don't want to pay for the first night at the hospital.

They said they will pay for anything medically needed. We will know when we are going on Monday.

Simon · 2008-04-04, 03:56 PM

All good wishes for success with the trial, and for the easiest possible time for you both while you're there.

Sloan-Kettering and the Anderson Cancer Center in Texas are so far above the others they may as well both be #1.

Jim · 2008-04-04, 05:19 PM

Quote:

Originally Posted by Simon

Sloan-Kettering and the Anderson Cancer Center in Texas are so far above the others they may as well both be #1.

I know

I have been doing a ton of research since the day Sloan-Kettering was mentioned. And for skin cancer, it really is the best place to be if you have to be at a place like that.

And I really have to hand it to my insurance company. Dealing with the makes me think Michael Moore was full of shit. Our insurance company not only approved this "out of network" huge expense in less than a day but when we started with them, they didn't care about the pre-existing cancer and they even backdated our membership to cover gamma knife surgery.

RedCherry · 2008-04-04, 05:34 PM

Quote:

Originally Posted by Jim

And I really have to hand it to my insurance company. Dealing with the makes me think Michael Moore was full of shit. Our insurance company not only approved this "out of network" huge expense in less than a day but when we started with them, they didn't care about the pre-existing cancer and they even backdated our membership to cover gamma knife surgery.

Welllll having tried to switch insurance companies and got denied with two different insurance companies due to pre existing very mild asthma, Michael Moore isn't full of shit on most companies.

May I ask who you are with? Maybe I can get a quote from them and save us some money. MadHatter and I pay alot for ours and to get our rates as low as they are we have a 5,0000 deductible a peice.

And good luck to you and your wife, she has been in my prayers for awhile. I'm so sorry that is happening to you.

Bobc01 · 2008-04-04, 07:27 PM

All the best to you both on the trial, would be great to hear it's been a success.

Jim · 2008-04-05, 08:25 AM

Quote:

Originally Posted by RedCherry

Welllll having tried to switch insurance companies and got denied with two different insurance companies due to pre existing very mild asthma, Michael Moore isn't full of shit on most companies.

May I ask who you are with? Maybe I can get a quote from them and save us some money. MadHatter and I pay alot for ours and to get our rates as low as they are we have a 5,0000 deductible a peice.

And good luck to you and your wife, she has been in my prayers for awhile. I'm so sorry that is happening to you.

I think the problems come from people getting insurance on their own without a group. All local chambers of commerce offer health insurance. And when you get it from them, you are considered an employee. The only information the insurance company asked for after I paid our chamber $100 to join was Name and SSN.

If you join alone, insurance companies can charge you any amount they choose and even have a $5000 deductible. To do that to you while you are in a group, they have to charge the entire group the same.

I would love for everyone to be able to use our insurance company but it's only available to people in Central New York.

docholly · 2008-04-05, 08:43 AM

Quote:

Originally Posted by Jim

I think the problems come from people getting insurance on their own without a group. All local chambers of commerce offer health insurance. And when you get it from them, you are considered an employee. The only information the insurance company asked for after I paid our chamber $100 to join was Name and SSN.

If you join alone, insurance companies can charge you any amount they choose and even have a $5000 deductible. To do that to you while you are in a group, they have to charge the entire group the same.

I would love for everyone to be able to use our insurance company but it's only available to people in Central New York.

Is that NY apple or something like that??? I remember we had them (or something apple related in the name) and they were excellent. We had 2 employees and multiple family members and it was still fairly resaonable. .

RC: One of my son's friends is in the biz here and swears he can get me a great policy at reasonable rates. It remains to be seen. However our only pre-existing condition is fat. Who knows how that might effect our deductible/monthly payments.

If it's any good i'll email you. I think NV is one of the few states that has no uninsured pool and offers a state policy.

Jim · 2008-04-05, 09:05 AM

It's MVP Healthcare. It has an apple in the logo but that's it. NY doesn't have a pool either but they have a law that says if you are insured for 11 months, you can't be turned down by anyone. We were not insured for 11 months and just got lucky, I guess. I mean, damn...we had the pre-existing condition of cancer.

I have seen stories of people that get insurance on their own and when something happens, their rates go as high as $50k/month. I am willing to pay the $100/year to be part of a large group.

2008-02-29, 11:59 AM	#26
RedCherry Of all the things I've lost, I miss my mind the most. Join Date: Apr 2004 Location: Middle of the Desert, Pahrump, NV Posts: 3,187	Sorry to hear about your wife Jim. She is in my prayers. __________________ Our 3D Comics and Props on Renderotica

2008-02-29, 01:18 PM	#28
stuveltje Live and learn. And take very careful notes! Join Date: Apr 2003 Location: Sunny Holland Posts: 6,157	i am so sorry to hear about those results Jim... i wish i knew how to use better words ( i know how to express my feelings in dutch, but you cant read that) to say what i feel about your message.... __________________ Canadian Sexlinks - submit Erotica search -submit

2008-02-29, 01:56 PM	#29
JackDaniel's I like work, it fascinates me, I can sit and look at it for hours... Join Date: Dec 2006 Posts: 3,217	Oh Jim ... I'm so sorry to hear your hard news Please know that you and your wife are in my thoughts and prayers as you travel this very difficult road. Stay strong during this difficult time! I know it's very hard beacause I'm going through a similar situation myself right now, but remember that hope and positive thinking always helps! I really hope that everything will turn up all right in the end. __________________ Submit Your Sites : Get Porn Links

2008-02-29, 02:37 PM	#30
Trev Is it over already? Join Date: Sep 2003 Location: the beautiful shores of Lake Erie Posts: 890	Very sorry to hear this news, Jim. All my best to you, Victoria, and your family. You'll be in my thoughts. __________________ Hey buddy... can you spare a sig?

2008-04-04, 10:46 AM	#33
Preacher There's Xanax in my thurible! Join Date: Apr 2005 Location: Wherever they screw on my head Posts: 2,441	Wow, I'm sorry to hear about the depth of the situation, but good luck with the trial. If there's anything you need help with to keep the board running, I'm sure you'll have plenty of volunteers. __________________ NSCash * This Depraved World

2008-02-29, 01:09 PM	#27
ArtWilliams You can now put whatever you want in this space :) Join Date: Sep 2004 Location: Toronto, Canada Posts: 6,244	Jim, I am so sorry to hear that. Really, really sorry.

2008-02-29, 07:20 PM	#31
Bobc01 Banned Join Date: Apr 2007 Location: Hell Posts: 817	Life just doesn't seem fair sometimes, if i had any luck at all i'd donate it to you and your lovely wife Jim. All the very best to you both.

2008-04-04, 10:12 AM	#32
Jim Banned Join Date: Aug 2003 Location: Mohawk, New York Posts: 19,477	We finally have an update. Damn, I really didn't say much in that first post did I? I am going to try to keep this short. The dizziness is being caused by cancer going to my wife's brain lining and spine. There have since been a lot more problems than just being dizzy. It seems that there is only 1 treatment available and that is in clinical trial at Sloane Kettering in NYC. And, that treatment is only available if there were antigens attached to the cancer cells. 25 days or so ago they took a lymph node and sent it to NYC to see if these antigens were there. We were told it was about a 10 day turn around and we found out the day before yesterday (well over 20 days) that the antigen was there. I was told when I found out that we would have details in about 4 days after our insurance approved the trial. That's where we are.... I have no idea how this will work. I know it involves a 9 week hospital stay but I don't know really how long we will be in NYC. I am guessing about 3 months but I could be way off. We could be leaving as soon as Monday but I suspect the following week for some reason. Obviously "scarce" is not the word to use while there. I think the word would be "gone" or at least, "very scarce". I did purchase a new laptop for the trip(s) but still... I think there may be more pressing things going on.

2008-04-04, 11:07 AM	#34
stuveltje Live and learn. And take very careful notes! Join Date: Apr 2003 Location: Sunny Holland Posts: 6,157	tough times, i know a friend of mine going thru the same thing, they are in an other country now already for 8 weeks to deal with it. I hope all goes fine and good luck __________________ Canadian Sexlinks - submit Erotica search -submit

2008-04-04, 11:20 AM	#35
sue-fl You can now put whatever you want in this space :) Join Date: May 2005 Location: Florida Posts: 2,837	So sorry to read how much the cancer has spread that is very sad. I wish your wife the best with the new treatment. Take care of yourself also Jim.

2008-04-04, 11:22 AM	#36
Tekster Formerly known as TekAngel Join Date: Feb 2007 Location: Valley of the Sun Posts: 1,951	All the best wishes Jim, hope for the best. __________________ Mr. Eros Free Porn Links iPhone Porn Phone-Pics

2008-04-04, 11:52 AM	#37
papagmp That'll teach you to leave your sister unattended..... Join Date: Jan 2007 Location: Colorado Springs Posts: 1,803	We all pray for the best. __________________ Submit: OutlawFreePorn

2008-04-04, 12:12 PM	#38
docholly Nothing funnier than the ridiculous faces you people make mid-coitus Join Date: Aug 2003 Location: Sin-City USA Posts: 4,973	Sorry to hear that.. but know that Sloan Kettering is the premiere cancer research hospital in the country so the care she'll get will be top of the line. We will all be hoping for the very best for you and Victoria. __________________ Support Indie Porn Sites OMGoddess You know you need some Bling!!

2008-04-04, 01:34 PM	#40
SheepGuy It's the end of the world as we know it, and I feel fine Join Date: Jul 2006 Location: Canada Posts: 2,527	Sorry to hear that Jim, but glad she is is getting the best treatment out there. __________________ If the Environment was a bank, they would have saved it by now.

2008-04-04, 01:53 PM	#41
T Pat You can now put whatever you want in this space :) Join Date: Aug 2003 Location: Paridise Posts: 3,244	Sorry to hear Jim been going through the same crap with my Dad for the last couple years __________________ How To Keep An Asshole In Suspense I'll Tell You Later

2008-04-04, 02:41 PM	#42
digifan ...and since we know an end will come it makes our living so much fun Join Date: Aug 2003 Location: In your dreams, baby Posts: 3,835	Ouch it is real sad... but the trial is a chance and a good one. __________________ Webair Rocks

2008-04-04, 02:44 PM	#43
Jim Banned Join Date: Aug 2003 Location: Mohawk, New York Posts: 19,477	And, the insurance just gave us a conditional approval. Not sure what that really means but it seems they don't want to pay for the first night at the hospital. They said they will pay for anything medically needed. We will know when we are going on Monday.

2008-04-04, 03:56 PM	#44
Simon That which does not kill us, will try, try again. Join Date: Aug 2003 Location: Conch Republic Posts: 5,150	All good wishes for success with the trial, and for the easiest possible time for you both while you're there. Sloan-Kettering and the Anderson Cancer Center in Texas are so far above the others they may as well both be #1. __________________ "If you're happy and you know it, think again." -- Guru Pitka

2008-04-04, 07:27 PM	#47
Bobc01 Banned Join Date: Apr 2007 Location: Hell Posts: 817	All the best to you both on the trial, would be great to hear it's been a success.

2008-04-05, 09:05 AM	#50
Jim Banned Join Date: Aug 2003 Location: Mohawk, New York Posts: 19,477	It's MVP Healthcare. It has an apple in the logo but that's it. NY doesn't have a pool either but they have a law that says if you are insured for 11 months, you can't be turned down by anyone. We were not insured for 11 months and just got lucky, I guess. I mean, damn...we had the pre-existing condition of cancer. I have seen stories of people that get insurance on their own and when something happens, their rates go as high as $50k/month. I am willing to pay the $100/year to be part of a large group.